16 Comments

Hola 👋 @Gary I just found your newsletter and I’m so grateful that you are sharing your story here. My mom have Parkinson’s disease and is been so challenging for her and for me as her daughter. At the moment she is starting to develop psicosis and she is seeing hallucinations. Is very heartbreaking. I believe she had a REALLY stressful and difficult life and that is the cause of her illness. Is there an email that I could contact you? I would love to chat with you if possible.

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Yes, you can contact me through my Parrkinson's website: http://www.outthinkingparkinsons.com/contact-us

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Thank you!

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Gary I thank you. For you. 🙏

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So intriguing to read of your journey and how symptoms are resolving or refining and that this latest one is linking to childhood!!! Dare I say this is fascinating when we discover links...over and over it seems :-). Thanks so much for sharing - it's wonderful to keep seeing one another discover the links and keep working through, bit by bit, in ways that for me at least, keep being a surprise and an intrigue!!

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Gary, I'm glad you got to the root of some of your chronic pain. Of course, it all starts in childhood, usually before we are able to comprehend that being shaken is violence, and that our parents have been advised to inflict harm instead of offer genuine care. It's just damn tragic. Best wishes to you as you continue healing!💖

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They couldn't give more diametrically opposed to wellbeing advice, like you say inflicting harm.

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Gary I love reading your story and how you are unraveling your history. As a PT is fascinates me because despite being mechanically focused with my patients, I believe our biggest healing organ is our subconscious. I too was left to cry and I think about the devastating effects that has on mow I relate to the world. Sometimes it is overwhelming thinking about how we all move about the world with out Traumas and traumas. I am doing the work with an amazing trauma based therapist and feel the most consolidated I have ever felt which is liberating. It is not easy work and not everyone wants to do this work and know themselves to this level. I wish you continued success on your journey. And keep inspiring others....amazing! Woot woot for you!

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Thank you!

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“my own idiopathic [“of unknown origin”] chronic disease have there origins in my early and developmental traumas, which include being born Caesarean, premature, separated from my mother in the first days, not breastfed, left to cry [as was the parenting advice of the day], and other Adverse Childhood Experiences.”

This is almost an exact duplicate of what happened to me. Plus it was an emergency caesarean, placenta previa, hemorrhage, and my mother was terrified.

My fear at night came from my mother wanting time to herself and dropping me and my sister at a double feature movie-- vampires and zombies-- when I was very young... I slept for years after that with a blanket wrapped around my neck.

Every life is a hero or heroine’s journey. My heart goes out to you, and you are an example for me of finding a path back to wholeness. ❤️

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I think of your being left alone to cry as a baby and small child - once again, "science" taught parents to do something (leave the children to cry for their own good) which had no basis in science (research into what most benefits babies, which is being soothed and held, etc, when they cry.

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Yes, knowing what I know now, I see modern parenting (and schooling) methods as horrific. Not sure I have written about it here, but the use of synthetic oxytocin in hospital births is also utterly ghastly. I also now know why I had night terrors - I was shaken as a baby at night for keeping someone awake! I also know of folks who are leaving their children at nursery when they are not even one years old.

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Instead of being shaken . . . so obvious what you needed - soothing, tenderness, being held against the body with lovingness. And yes,, horrifying that being with infants is not encouraged - and instead parental leave is often 6 weeks.

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I would be interested in interviewing you about your Newsletter concept and experiences on a recorded zoom call. Let me know if this appeals to you.

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I really appreciate the invitation. Right now, I've decided I am not doing live interviews or appearances because my symptoms are still too unpredictable for me to schedule properly, and I find zoom especially stressful. Can I get back to you when I am in a position to do interviews without the stress?

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Of course Gary, wishing you the very best!

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